Home > Literatuur
Literatuur
- Advies- en expertgroep kwaliteitsstandaarden (AQUA). Leidraad voor Kwaliteitsstandaarden. Diemen, Zorginstituut Nederland: 2015.
- Alshehri A, Lo A, Baird R. An analysis of early nonmortality outcome prediction in esophageal atresia. J Pediatr Surg 2012;47:881-4.
- Bjornson CL, Mitchell I. Congenital tracheoesophageal fistula and coordination of care: Expectations and realities. Paediatr Child Health 2006;11(7):395-9.
- Burge DM, Shah K, Spark P, Shenker N, Pierce M, Kurinczuk JJ, Draper ES, Johnson PR, Knight M; British Association of Paediatric Surgeons Congenital Anomalies Surveillance System (BAPS-CASS). Contemporary management and outcomes for infants born with oesophageal atresia. Br J Surg 2013;100:515-21.
- Campbell F, Biggs K, Aldiss SK, O'Neill PM, Clowes M, McDonagh J, While A, Gibson F. Transition of care for adolescents from paediatric services to adult health services. Cochrane Database Syst Rev 2016;4:CD009794.
- Connor MJ, Springford LR, Kapetanakis VV, Giuliani S. Esophageal atresia and transitional care--step 1: a systematic review and meta-analysis of the literature to define the prevalence of chronic long-term problems. Am J Surg. 2015 Apr;209(4):747-59.
- Coördinatieplatform Zorgstandaarden. Raamwerk Individueel Zorgplan. Den Haag; CPZ: 2012.
- Coppens CH, van den Engel-Hoek L, Scharbatke H, de Groot SA, Draaisma JM. Dysphagia in children with repaired oesophageal atresia. Eur J Pediatr 2016;175(9):1209-17.
- De Boer EM, Prager JD, Ruiz AG, Jensen EL, Deterding RR, Friedlander JA, Soden J. Multidisciplinary care of children with repaired esophageal atresia and tracheoesophageal fistula. Pediatr Pulmonol 2016;51(6):576-81.
- Dellenmark-Blom M, Chaplin JE, Gatzinsky V, Jönsson L, Abrahamson K. Health-related quality of life among children, young people and adults with esophageal atresia: a review of the literature and recommendations for future research. Qual Life Res 2015;24:2433-45.
- Deurloo JA, Ekkelkamp S, Hartman EE, Sprangers MA, Aronson DC. Quality of life in adult survivors of correction of esophageal atresia. Arch Surg 2005;140:976-80.
- Deurloo JA, Klinkenberg EC, Ekkelkamp S, Heij HA, Aronson DC. Adults with corrected oesophageal atresia: is oesophageal function associated with complaints and/or quality of life? Pediatr Surg Int 2008;24:537-41.
- Deutsche Gesellschaft für Kinderchirurgie. Leitlinie der Deutschen Gesellschaft für Kinderchirurgie. Kurzstreckige Ösophagusatresie. 2012.
- Van Dijk M, Timmerman M, Martel C, Ramsay M. Towards the development of a Dutch screening instrument for the detection of feeding problems in young children. Netherlands Journal of Psychology, 2011, 66, 112-119.
- Dingemann C, Dietrich J, Zeidler J, Blaser J, Gosemann JH, Ure BM, Lacher M. Early complications after esophageal atresia repair: analysis of a German health insurance database covering a population of 8 million. Dis Esophagus 2015 April 20. [Epub ahead of print]
- Dingemann C, Meyer A, Kircher G, Boemers TM, Vaske B, Till H, Ure BM. Long-term health-related quality of life after complex and/or complicated esophageal atresia in adults and children registered in a German patient support group. J Pediatr Surg 2014;49:631-8.
- Dingemann J, Szczepanski R, Ernst G, Thyen U, Ure B, Goll M, Menrath I. Transition of Patients with Esophageal Atresia to Adult Care: Results of a Transition-Specific Education Program. Eur J Pediatr Surg 2016 Aug 14. [Epub ahead of print]
- Donoso F, Kassa AM, Gustafson E, Meurling S, Lilja HE. Outcome and management in infants with esophageal atresia - A single centre observational study. J Pediatr Surg 2016. pii: S0022-3468(16)30003-3.
- Faugli A, Bjørnland K, Emblem R, Nøvik TS, Diseth TH. Mental health and psychosocial functioning in adolescents with esophageal atresia. J Pediatr Surg 2009;44:729-37.
- Gatzinsky V, Jönsson L, Johansson C, Göthberg G, Sillén U, Friberg LG. Dysphagia in adults operated on for esophageal atresia--use of a symptom score to evaluate correlated factors. Eur J Pediatr Surg 2011;21:94-8.
- Glinianaia SV, Embleton ND, Rankin J. A systematic review of studies of quality of life in children and adults with selected congenital anomalies. Birth Defects Res A Clin Mol Teratol 2012;94:511-20.
- Harmsen WJ, Aarsen FJ, van der Cammen-van Zijp MH, van Rosmalen JM, Wijnen RM, Tibboel D, IJsselstijn H. Developmental problems in patients with oesophageal atresia: a longitudinal follow-up study. Arch Dis Child Fetal Neonatal Ed 2016 Aug 31.
- Haute Autorité de Santé. Atrésie de l’oesophage. Actualisation. Saint-Denis-la-Plaine; HAS: 2008.
- Haute Autorité de Santé. Atrésie de l’oesophage. Protocole national de diagnostic et de soins. Saint-Denis-la-Plaine; HAS: 2009.
- KNMG, V&VN, KNOV, KNGF, KNMP, NIP, NVZ, NFU, GGZ Nederland, NPCF. Handreiking Verantwoordelijkheidsverdeling bij samenwerking in de zorg. Utrecht; KNMG: 2010.
- Koivusalo A, Pakarinen MP, Turunen P, Saarikoski H, Lindahl H, Rintala RJ. Health-related quality of life in adult patients with esophageal atresia—a questionnaire study. J Pediatr Surg 2005;40:307-12.
- Koivusalo AI, Pakarinen MP, Rintala RJ. Modern outcomes of oesophageal atresia: single centre experience over the last twenty years. J Pediatr Surg 2013;48:297-303.
- Kovesi T. Long-term respiratory complications of congenital esophageal atresia with or without tracheoesophageal fistula: an update. Dis Esophagus 2013;26:413-6.
- Krishnan U, Mousa H, Dall'Oglio L, Homaira N, Rosen R, Faure C, Gottrand F. ESPGHAN-NASPGHAN Guidelines for the Evaluation and Treatment of Gastrointestinal and Nutritional Complications in Children with Esophageal Atresia- Tracheoesophageal Fistula. J Pediatr Gastroenterol Nutr 2016 Aug 30. [Epub ahead of print]
- Kubota A, Nose K, Yamamoto E, Kosugi M, Yamakawa S, Sawada M, Hirano S, Shiraishi J, Kitajima H, Kawahara H, Yoneda A, Nakai H, Nara K, Goda T, Ibuka S. Psychosocial and cognitive consequences of major neonatal surgery. J Pediatr Surg 2011;46:2250-3.
- Lévesque D, Baird R, Laberge JM. Refractory strictures post-esophageal atresia repair: what are the alternatives? Dis Esophagus 2013;26:382-7.
- Lévesque D. Multidisciplinary clinics: how to improve the follow-up of patients. J Pediatr Gastroenterol Nutr 2011;52 Suppl 1:S37-8.
- Lilja HE, Wester T. Outcome in neonates with esophageal atresia treated over the last 20 years. Pediatr Surg Int 2008;24:531-6.
- Ludman L, Spitz L. Quality of life after gastric transposition for oesophageal atresia. J Pediatr Surg 2003;38:53-7; discussion 53-7.
- Malmström K, Lohi J, Lindahl H, Pelkonen A, Kajosaari M, Sarna S, Malmberg LP, Mäkelä MJ. Longitudinal follow-up of bronchial inflammation, respiratory symptoms, and pulmonary function in adolescents after repair of esophageal atresia with tracheoesophageal fistula. J Pediatr. 2008;153(3):396-401.
- Mirra V, Maglione M, Di Micco LL, Montella S, Santamaria F. Longitudinal Follow-up of Chronic Pulmonary Manifestations in Esophageal Atresia: A Clinical Algorithm and Review of the Literature. Pediatr Neonatol 2016 May 29; Epub 2016 May 29.
- Mortell AE, Azizkhan RG. Esophageal atresia repair with thoracotomy: the Cincinnati contemporary experience. Semin Pediatr Surg 2009;18:12-9.
- Nederlandse Vereniging van Artsen voor Longziekten en Tuberculose. Richtlijn Diagnostiek en antimicrobiële behandeling van recidiverende lagereluchtweginfecties. Utrecht; NVALT: 2005.
- Nederlandse Vereniging voor Kindergeneeskunde. Richtlijn Apparent Life Threatening Event. Utrecht; NVK: 2006.
- Nederlandse Vereniging voor Kindergeneeskunde. Richtlijn Diagnostiek en behandeling van ongecompliceerde pneumonie bij kinderen in de tweede en derde lijn. Utrecht; NVK: 2006.
- Nederlandse Vereniging voor Kindergeneeskunde. Richtlijn Onderste luchtweginfecties. Utrecht; NVK: 2015.
- Newton LE, Abdessalam SF, Raynor SC, Lyden ER, Rush ET, Needelman H, Cusick RA. Neurodevelopmental outcomes of tracheoesophageal fistulas. J Pediatr Surg 2016;51(5):743-7.
- Pearson EG, Downey EC, Barnhart DC, Scaife ER, Rollins MD, Black RE, Matlak ME, Johnson DG, Meyers RL. Reflux esophageal stricture--a review of 30 years' experience in children. J Pediatr Surg 2010;45:2356-60.
- Pedersen RN, Calzolari E, Husby S, Garne E; EUROCAT Working group. Oesophageal atresia: prevalence, prenatal diagnosis and associated anomalies in 23 European regions. Arch Dis Child 2012;97:227-32.
- Peetsold MG, Heij HA, Deurloo JA, Gemke RJ. Health-related quality of life and its determinants in children and adolescents born with oesophageal atresia. Acta Paediatr 2010;99:411-7.
- Puntis JW, Ritson DG, Holden CE, and Buick RG. Growth and feeding problems after repair of oesophageal atresia. Arch Dis Child. 1990 Jan; 65(1): 84–88.
- Ramsay M, Birnbaum R. Feeding difficulties in children with esophageal atresia: treatment by a multidisciplinary team. Dis Esophagus 2013;26(4):410-2.
- Ramsay M, Martel C, Porporion M, Zygmuntowicz C. The Montreal Children’s Hospital Feeding Scale: A brief bilingual screening tool for identifying feeding problems, Paediatrics and Child health 2011, 16(3), 147-151.
- Roberts K, Karpelowsky J, Fitzgerald DA, Soundappan SS. Outcomes of oesophageal atresia and tracheo-oesophageal fistula repair. J Paediatr Child Health. 2016 May 20.
- Royal College of Nursing. Transitiezorg voor adolescenten. Richtlijn voor verpleegkundigen. London; RCN: 2008.
- Sadreameli SC, McGrath-Morrow SA. Respiratory Care of Infants and Children with Congenital Tracheo-Oesophageal Fistula and Oesophageal Atresia. Paediatr Resp Rev 2016;17:16-23.
- Schier F, Korn S, Michel E. Experiences of a parent support group with the long-term consequences of esophageal atresia. J Pediatr Surg 2001;36:605-10.
- Schneider A, Blanc S, Bonnard A, Khen-Dunlop N, Auber F, Breton A, et al. Results from the French National Esophageal Atresia register: one-year outcome. Orphanet J Rare Dis 2014;9:206.
- Schneider A, Michaud L, Gottrand F. Prevalence of Barrett Esophagus in Adolescents and Young Adults With Esophageal Atresia. Ann Surg 2016 May 26.
- Sfeir R, Bonnard A, Khen-Dunlop N, Auber F, Gelas T, Michaud L, et al. Esophageal atresia: data from a national cohort. J Pediatr Surg 2013;48:1664-9.
- Shah R, Varjavandi V, Krishnan U. Predictive factors for complications in children with esophageal atresia and tracheoesophageal fistula. Dis Esophagus. 2015;28(3):216-23.
- Shaw-Smith C. Oesophageal atresia, tracheo-oesophageal fistula, and the VACTERL association: review of genetics and epidemiology. J Med Genet 2006;43:545-54.
- Shawyer AC, D'Souza J, Pemberton J, Flageole H. The management of postoperative reflux in congenital esophageal atresia-tracheoesophageal fistula: a systematic review. Database of Abstracts of Reviews of Effects 2014;2:987-996.
- Sistonen S, Malmberg P, Malmström K, Haahtela T, Sarna S, Rintala RJ, Pakarinen MP. Repaired oesophageal atresia: respiratory morbidity and pulmonary function in adults. Eur Respir J 2010;36:1106-12.
- Stam H, Hartman EE, Deurloo JA, Groothoff J, Grootenhuis MA. Young adult patients with a history of pediatric disease: impact on course of life and transition into adulthood. J Adolesc Health 2006;39:4-13.
- Vergouwe FW, IJsselstijn H, Wijnen RM, Bruno MJ, Spaander MC. Screening and Surveillance in Esophageal Atresia Patients: Current Knowledge and Future Perspectives. Eur J Pediatr Surg 2015;25(4):345-52.
- Vergouwe FW, Wijnen RM, Bruno MJ, Spaander MC. Prevalence of Barrett Esophagus in Adolescents and Young Adults With Esophageal Atresia. Ann Surg 2016 May 9.
- VOKS, VSOP. Resultaten Achterbanraadpleging. VOKS, VSOP: 2015.
- VOKS. Resultaten PROM Achterbanraadpleging. VOKS: 2014.
- VOKS. Richtlijnen voor het behandelen van kinderen met een oesophagusatresie (OA). VOKS: 2014.
- VSOP. Visiedocument Concentratie en organisatie van zorg bij zeldzame aandoeningen. Soest; VSOP: 2015.
- VSOP. Generiek zorgthema ‘Communicatie en voorlichting bij zeldzame aandoeningen. Soest; VSOP: 2014.
- VSOP. Generiek zorgthema ‘Psychosociale zorg bij zeldzame aandoeningen’. Soest; VSOP: 2015.
- VSOP. Generiek zorgthema ’Zelfmanagement bij zeldzame aandoeningen’. Soest; VSOP: 2012.
- Wang B, Tashiro J, Allan BJ, Sola JE, Parikh PP, Hogan AR, Neville HL, Perez EA. A nationwide analysis of clinical outcomes among newborns with esophageal atresia and tracheoesophageal fistulas in the United States. J Surg Res 2014;190:604-12.
- Wessels M, Hielkema L, van der Weijden T. How to identify existing literature on patients' knowledge, views, and values: the development of a validated search filter. J Med Libr Assoc 2016;104(4):320-324.
- IJsselstijn H, Gischler SJ, Toussaint L, Spoel M, Zijp MH, Tibboel D. Growth and development after oesophageal atresia surgery: Need for long-term multidisciplinary follow-up. Paediatr Respir Rev 2016;19:34-8.
- Zwaan E, Meij-de Vries A, van Deutekom AW, van der Steeg AF, Sleeboom C, Heij HA. Een pasgeborene die bellen blaast: alarmsignaal voor oesofagusatresie. Ned Tijdschr Geneeskd 2013;157:A5633.