Bijlage 8 Zoekstrategie literatuur 

Database

Datum

Zoektermen

Aantal artikelen

Pubmed

P Fragiele X syndroom =

"Fragile X Syndrome"[Mesh] OR Fragile X OR Martin Bell syndrome OR Marker x syndrome

7453

Onderstaande zoektermen werden steeds gecombineerd met bovenstaande zoektermen voor ‘P Fragiele X syndroom’

Integrated care

Pubmed

P

AND

"Delivery of Health Care, Integrated"[Mesh] OR "Comprehensive Health Care"[Mesh] OR "Disease Management"[Mesh] OR "Patient Care Team"[Mesh] OR "Continuity of Patient Care"[Mesh]

21

Educatie / communicatie

Pubmed

P

AND

"Health Education"[Mesh] OR "Health Communication"[Mesh]

11

Informatie-uitwisseling

P

AND

"Health Information Exchange"[Mesh]

Patiëntenperspectief

Pubmed

P

AND

((Patient Participation[Mesh] OR consumer participation[Mesh] OR Professional-Patient Relations[Mesh] OR Patient-Centered Care[Mesh] OR Patient Preference[Mesh] OR Patient Satisfaction[Majr] OR Patient Education as Topic[Mesh] OR Attitude to Health[Mesh] OR Attitude to Death[Mesh] OR Patient Acceptance of Health Care[Mesh] OR Health Knowledge, Attitudes, Practice[Mesh] OR Focus Groups[Mesh] OR Quality of Life[Majr] OR Self Care[mh:noexp] OR Self Concept[Mesh] OR Self-examination[Mesh] OR Cooperative Behavior[Mesh] OR Adaptation, Psychological[Mesh] OR Decision Support Techniques[Mesh] OR Self-Help Groups[Mesh] OR Community Networks[Mesh] OR Emotions[Mesh] OR Consumer Satisfaction[Mesh] OR Needs Assessment[Mesh] OR Personal Autonomy[Mesh] OR Patient Advocacy[Mesh] OR Life Change Events[Mesh]) OR (patient perspective*[tiab] OR patient's perspective*[tiab] OR patient desire*[tiab] OR patient's desire*[tiab] OR "patient's desires"[tiab] OR patient view*[tiab] OR patient's view*[tiab] OR patient expression*[tiab] OR patient's expression*[tiab] OR patient attitude*[tiab] OR patient's attitude*[tiab] OR patient involvement*[tiab] OR patient's involvement*[tiab] OR patient decision*[tiab] OR patient's decision*[tiab] OR patient activation[tiab] OR patient's activation[tiab] OR patients activation[tiab] OR patient empowerment[tiab] OR patient participation[tiab] OR patient's participation[tiab] OR patients participation[tiab] OR patient collaboration[tiab] OR patient's collaboration[tiab] OR patients collaboration[tiab] OR expert patient*[tiab] OR consumer participation[tiab] OR consumer perspective[tiab] OR consumers perspective[tiab] OR consumer's perspective[tiab] OR consumer involvement[tiab] OR patient-focused[tiab] OR patient-centred[tiab] OR patient-centered[tiab] OR patient needs[tiab] OR self-management[ti] OR self-perception[tiab]) OR (Patients[Majr] AND (Communication[MeSH Terms] OR Decision Making[Mesh])))

266